Remember the very important Kidney Biopsy procedure I had a little more than a week ago to determine if my cancer is also spreading to my heart, a rare and serious condition known as Amyloidosis? Well, the final relults are in you can put a big mark the win column in my battle against multiple myeloma!!!!
The results are very good, though my very personal fight against this nasty, sneaky, and life changing form of cancer still rolls on every day. The great news from my oncologist, Doctor Anderson, allows us all to breathe easier today. Here is a part of the email from Doctor Anderson.
“Good news, no amyloidosis.
I will have to see how your heart makers behave before deciding if we need to ask for a heart biopsy in the coming weeks but we may be able to avoid it since no signs of amyloid in the kidneys.”
Last week Doctor Anderson felt I was doing well enough, despite being visibly tired, that he felt it was ok give me a much needed week of from Chemo treatments. Now the good news about the kidney biopsy is delivered. Let’s all celebrate! Knowing we still have a long road to hoe.
My Wednesday started at 5am and concluded at about 5pm, which is a load for a cancer patient.
I have bad news and good news (yes, I hate that phrase too). My oncologist did not have any news for me about the kidney biopsy from last week. He simply has not heard any news as yet, which was a real bummer.
The good news, came as big surprise to Melinda and I, was Doctor Anderson canceled the Chemo treatment for the day and sent us home. That was a first for me, and since as last weeks bwas a scheduled Chemo as time off means that for the first time I could enjoy back to back weeks without Chemo. I’ll take it! Doctor Anderson said that my overall numbers continue to show inprovment, but that I looked tired. Amen to that. He also mentioned that based on my numbers it’s ok to take some time off because, “we’ve got Melanoma on the run”. That felt good to hear.
He also scheduled a blood transfusion for today, which I have been wanting to some time because my hemoglobin level is very low and is leading to Amemia and dizziness when I stand which is a leading reason for a couple of recent falls I’ve had. The last transfusion I had was a couple of months ago and was a big help.
Wednesday is almost certainly the most hectic day of the week on my schedule, with today as no exception.
I’m already in the dialysis chair which should end around 10am or just a bit shorter. I will take a break for a lunch or breakfast meal and then it will be on to Dallas for Chemo. Melinda is taking the day off so that she can driive me. Most of my Chemo sessions take place at the Moncrief Cancer Institute in Fort Worth, which I really like because its an easy drive from my house and it is usually not crowded and I can get in and out pretty quickly.
The reason I will be making the longer trip Dallas today is because I will not only Chemo but I have an important meeting with my oncologist, Dr. Larry Anderson, who is based at based there at UT Southwestern, wich owns the aforementioned center in Fort Worth. I except that Dr. Anderson will go over the results of the kidney biopsy I had last week. Of course I hope that he has good news and that I can transition away from Chemo and towards Stem Cell Transplant surgery, which I will explain as I get closer to it.
This is getting bothersome! I fell down again this morning but I am still extremely lucky because there is no damage. No broken bones anything.
As mentioned in an earlier post, multiple myeloma patients are at a very high risk for broken bones.
The main reason for falls both today and last Friday is because I am getting very dizzy of late when I stand up too quick from sitting and start walking.
My hemoglobin count is the culprit. As of my last blood work by my Oncologist, my hemoglobin count was at 7.8. That’s low. According to the Mayo Clinic, “low hemoglobin count is generally defined as less than 13.5 grams”.
The lower the count is lower the amount of red blood cells my body is getting for oxygen and I feel faint when I get up until my body stabilizes things.
A blood transfusion is a quick way to boost the red blood count and I did have one a couple of months ago and felt great afterwards. My Oncologist has not ordered one this time. Yet.
Today I was headed to the restroom and started feeling dizzy and faint about halfway there. I made it to the door handle and hit the floor, landing on all fours. I stayed that way for a minute until Melinda helped me up. I made a quick inventory of my body and declared myself fine.
Wednesday was one of those tough days which included a morning dialysis treatment and afternoon chemo. Yes, I was drained at the end of the day, as usual.
Cecil undergoing Chemo treatment. 6-14-17
Just before Chemo I had my monthly chat with my Oncologist, doctor Larry Anderson , Oncology specialist at UT Southwestern in Dallas. The only oncologist in North Texas to exclusively treat plasma cell cancers, he sees about 90 percent of the Multiple Myeloma patients who come to UT Southwestern .
Melinda and I are very comfortable with him because he shoots straight and keeps us informed.
Cecil undergoing Chemo treatment. 6-14-17
I was hoping that he would tell us the Chemo treatments are done with because I had progressed so far. Instead he told us that he wants to do a Kidney Biopsy because he wants to be 100% sure the Cancer has not spread to, and is effecting my heart. A condition known as Cardiac amyloidosis. The somewhat positive feeling l have about this is neither Dr. Anderson or my Cardiologist have a strong feeling I have this but since I have multiple myeloma cancer the only way to tell safely is a kidney biopsy.
So, I will be told in the next week or when I will have that procedure and when I know you will know too 🤣.